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I’m going to try a new post style and gather together some of the links that have caught my attention recently. Here’s what I’ve discovered while browsing blogs and articles. May is #MEawareness month, so in honor of raising awareness for Myalgic Encephalomyelitis (also called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or abbreviated ME/CFS) my links for this month are focused on this illness, as well as tips for living well with debilitating fatigue. This is one of my chronic health conditions, and hopefully raising awareness will lead to further research, understanding, and—eventually—an affective way to treat this condition.   10 Low activity creative hobbies forspoonies  (A Journey Through the Fog) “Creative hobbies do not have to be difficult. Many of us lack the confidence to start, but something as simple as colouring is a great, therapeutic and low energy way to express our creativity.”   11 Benefits of Living with Chronic Illness & Autoimmune Disease (Healthy Habits Reset) “If you’ve ever experienced chronic fatigue, you know that there are no words (at least in the English language) that could possibly encompass all that is: chronic fatigue.” M.E. Patients and the Researchers that Silence Them (Medium.com) “In my former life, before sickness struck, I trained and worked as a journalist, and the lack of research involved in framing severely ill patients as anti-science makes my heart ache; both for my former profession, and for the millions of patients given no right of reply.“ “And what recent press coverage has left out of this debate, is that the findings of the PACE trial have been widely condemned, not just by patients, but throughout the medical profession as well.”   TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study – virology blog (Virology Blog) This is a long but very informative read. Here are several quotes that give an overview of questions raised about the PACE study and how it has represented ME/CFS. “The P

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Last updated: June 17, 2021