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simonsfoundation.org

Simons Award Manager (SAM) FAQ and Instructional Videos on Simons Foundation

hdsa.org

Arik C. Johnson, Psy.D., Jane S. Paulsen, Ph.D., 2014, 66 pages. A must-read for anyone who deals extensively with an HD-affected individual, this book explains not only the behavior challenges created by HD, but their origin in the HD-affected brain. By understanding the basis of these behaviors, the authors are able to suggest effective ways of dealing with and preparing for them. The book also covers environmental, individual and health factors that contribute to behavior problems. Problem-solving tips and techniques are given for behaviors arising from communication difficulties, memory problems, cognitive break-down and emotional instability. DOWNLOAD: Click here for a FREE PDF DOWNLOAD. SPECIAL OFFER: Thanks to a generous educational grant, HDSA is able to offer this updated guide available to HD families and their medical professionals at no cost. Since the first edition of Understanding Behavior was published in 2000, much has been added to our understanding about HD including behavioral changes that take place along the continuum of the disease. Written specifically for medical professionals, this second edition contains strategies that can be shared with caregivers as well as case studies that illustrate many of the most challenging behaviors associated with HD. Click here to fill the form and get a printed copy of this guide.

lbda.org

Calling leaders of the Lewy body dementia community to join our Industry Advisory Council (IAC). Read more by Lewy Body Dementia Association.

tourette.org

The Tourette Association of America aims to answer FAQs about Tourette Syndrome and Tic Disorders.

dementiauk.org

Dementia UK is a charity that provides Admiral Nurses for families affected by dementia. Call our Dementia Helpline to find out how we can support you.

michaeljfox.org

Get answers to common questions that are asked by potential donors, fundraisers, grant applicants, awardees, clinical trial participants and more. You can also find contact information within each section if your specific question is not addressed.

alzheimer-schweiz.ch

Hilfe, meine Festplatte ist überfüllt!

prisms.org

In memory of Brian’s remarkable life, the Memorial Fund was established to recognize and support a unique group: siblings of those affected by Smith-Magenis Syndrome. These individuals walk a path shaped by both challenge and love. The Fund seeks to honor siblings who, like Brian, demonstrate empathy, resilience, and a profound sense of responsibility—not just within their families, but within the wider SMS and PRISMS communities.

neuro.se

Mental trötthet eller hjärntrötthet som även kallas fatigue är en bekymmersam konsekvens av neurologiska diagnoser som exempelvis MS och stroke. Det är även vanligt efter traumatiska skallskador och vid utmattningssyndrom. Vid fatigue kan även balans, koordination och motorik påverkas tillfälligt.