mdaconference.orgの競合サイトトップ10

mda.org

When Cindi Reamer, a 58-year-old auditor and coder with limb-girdle muscular dystrophy (LGMD) was a child in Fort Wayne, Ind., she told her orthopedist that she wanted to work for him one day. At age 20, she did just that. Steven Glock, M.D., hired her as a telephone switchboard operator, and she has been working in his practice ever since, moving from the switchboard into coding. Holding down a job for more than 30 years as her LGMD progressed has been challenging at times. “There’s something every year that I could do last year but I can’t do this year,” she says.

dtrf.org

Find Support to Help You on Your Journey A desmoid tumor diagnosis can impact many aspects of your life and the lives of your family members. Thankfully, programs to support […]

icnmd.org

25 - 29 October 2024 | Perth, Australia | Join Us for Knowledge, Innovation, and Collaboration in Neuromuscular Research at ICNMD 2024

myotonic.org

the myotonic dystrophy foundation (mdf) is the leading global advocate helping patients and families navigate the myotonic dystrophy (dm) disease process.

sareptadmd.com

SareptAssist is here to support Duchenne families as they navigate Duchenne muscular dystrophy (DMD)

actionduchenne.org

Thank you for taking the brave step to find out more about your child's diagnosis of Duchenne muscular dystrophy. What is Duchenne? Duchenne muscular dystrophy is a rare, muscle wasting condition which occurs mainly in boys and is often diagnosed around the age of 2 to 4. Although there is no cure for Duchenne, improvements

porphyriafoundation.org

Porphyrias Consortium Publication List

lgmd-info.org

The Limb-Girdle Muscular Dystrophy Awareness Day team has developed these resources to help you plan and implement your local LGMD Awareness Day efforts.By telling your story and sharing your experiences, you help others understand what it is like to live with LGMD. You play an important role in this global awareness campaign. Reach out to

pnsociety.com

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