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cafamily.org.uk

we are contact, the charity for families with disabled children. we support and bring families together and help them take action for others

ccakids.com

Empowering and giving hope to individuals affected by facial differences

eurordis.org

EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.

hnf-cure.org

Collaborative efforts between researchers, healthcare providers, and patients, facilitated by the Hereditary Neuropathy Foundation, has created a synergy that has accelerated the pace of discovery.

raredisease.org.uk

Medical genetics services cover areas of England with populations of between 1 and 5 million people. Services are usually coordinated through a main hospital where the clinical service is based with regular clinics in local hospitals across the service’s area.

rarediseases.org

NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

addiandcassi.com

During the Vote4Hope Pepsi Refresh Rare Disease Campaign, I am making video postings throughout September to raise awareness for all rare diseases, not simply the horrific disease called Niemann Pick Type C that my six year old identical twins suffer from. Today's videos are some of the most heartwrenching videos I have ever watched. The

chromodisorder.org

Every calendar directly supports Chromosome Disorder Outreach’s mission to connect, educate, and empower families navigating rare disorders

cleftline.org

Share your cleft or craniofacial journey with ACPA to inspire others, raise awareness, and foster a supportive community. Your story matters!

nzord.org.nz

rare disorders nz is the only umbrella group for rare disorders in new zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the more than 377,000 kiwis with a rare condition.