addiandcassi.com 的前十大競爭對手

eurordis.org

EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.

rarediseases.org

NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

nzord.org.nz

rare disorders nz is the only umbrella group for rare disorders in new zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the more than 377,000 kiwis with a rare condition.

aboutface.ca

Put your aprons on – it’s baking time with AboutFace and we’re making brownies! Registration closes Friday, November 22nd at 9 pm EST.

cafamily.org.uk

we are contact, the charity for families with disabled children. we support and bring families together and help them take action for others

ccakids.com

Empowering and giving hope to individuals affected by facial differences

chromodisorder.org

Reported cases of 3q26.33q22.7 deletions share a distinct phenotype, including intrauterine growth restriction (IUGR), microcephaly, and more

cleftline.org

Share your cleft or craniofacial journey with ACPA to inspire others, raise awareness, and foster a supportive community. Your story matters!

hnf-cure.org

How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?

raredisease.org.uk

We’re glad you would like to join our growing alliance by applying to become a member of Genetic Alliance UK.