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canavan.org

Finding the cure Starts with you Donate Now

dystonia-foundation.org

Give dystonia a voice to Congress and policy makers. You have the power to influence policy makers responsible for the areas of government that impact the dystonia community. Help us educate and influence legislators and government officials who influence, for example, how much money is allocated to medical research year, access to treatments, and other issues that impact people with dystonia. Advocates educate legislators about the needs of the dystonia community. The DMRF is a member organization and provides staff support to the Dystonia Advocacy Network, a team of dystonia organizations working together to give the dystonia community a voice in Washington, DC. You can become an empowered dystonia advocate - the community needs your voice!

fanconi.org

This is an extension of a project funded in 2023. Correcting FA mutations in all cells of the body may prevent issues such as bone marrow failure and cancer in people with FA. Since mutations in FA genes start during the gestational process, the ideal time to correct genes may be in utero. The goal […]

ulf.org

Discover how United Leukodystrophy Foundation in DeKalb, IL supports medical research, provides referrals, and more.

ntsad.org

In about a fifth of the cases of Parkinson’s disease, look to a small, malfunctioning protein in the lysosome as a risk factor, say University of Michigan researchers.Lysosomes are the garbage collectors of cells. These organelles are responsible for breaking down the “trash” in the cell—misfolded proteins, worn out organelles—that cells collect in a process

ipif.org

ipif is guided by a scientific advisory council, whose members are acknowledged experts in their fields. ipif consists of patients, physicians, educators, parents, relatives, and volunteers who are striving to take a leadership role in supporting research, education, and funding with an ultimate aim to ameliorate the burdens of ip. ipif is a source of reliable information and support for patients and families in the united states and worldwide. its mission is to encourage and support research on ip, and to provide family support and education.

cjdfoundation.org

Programs and Events See All Events Past Events If you are hosting a Family Fundraiser to help the CJD Foundation, let us know about it. Share Your Event Information If you want to start your own fundraising page it’s simple and you can make a huge impact! Start Your Own Fundraising Page