sicklecelldisease.org 的前十大競爭對手

sicklecellsociety.org

Children & Young Person’s Peer Mentoring Programme What the Programme Offers How It Works Why It Matters “If it weren’t for the mentoring programme, I wouldn’t be the person I am today. It has truly been an unforgettable experience.” “My mentor has been a listening ear, supporting my goals and helping me balance education, career,Continue reading "Mentoring"

scdfc.org

It's time to "Tee it High & Let it Fly' for sickle cell disease. Join us at our annual charity golf classic. Great opportunities for golfers, volunteers and sponsors for this enjoyable day.

liveunlimited.com

Discover how sickle cell disease (SCD) impacts the body and explore real patient stories about living with this rare genetic blood disorder.

editasmedicine.com

Editas Medicine is building a leading gene editing company that uses CRISPR to develop medicines for people living with serious diseases. Learn more about Editas Medicine, our Inspiritas Culture, and how to join our team.

sc101.org

How the Cleveland Browns star wide receiver is making an impact on and off the field for sickle cell Written by Dr. Stephen Boateng, Director of Research and Partnerships, Sickle Cell 101 For Donovan Peoples-Jones (DPJ), he is no stranger to making an impact on the football field. The Cleveland Browns star wideout recorded

patienteducation.asgct.org

Inherited retinal disorders (IRD) are disorders that affect the retina, the part of the eye that sees light, leading to severe vision loss or blindness.…

geneticalliance.org.uk

SWAN UK is the only dedicated support community in the UK for families affected by undiagnosed genetic conditions.

fdmasalliance.org

FD/MAS Alliance is working to raise awareness for fibrous dysplasia, McCune-Albright syndrome. As part of that effort, we are holding a State Proclamation campaign to get as many states as possible to recognize FD/MAS Global Awareness Week 2026.

kaleidoscopefightinglupus.org

Lupus retinopathy is the most common vision concern for those living with SLE, and is often one of the first symptoms for the newly diagnosed.  Yet, serious problems with eyesight are relatively rare, and there are many ways to avoid the damage that lupus can cause.  So, read on to learn more about how lupus…