mdaquest.org的 10 大竞争对手

mda.org

Muscular Dystrophy Association (MDA) has been at the center of progress for people living with muscular dystrophy, ALS, and over 300 other neuromuscular conditions for 75 years.

neuromuscularfoundation.org

american neuromuscular foundation -

treat-nmd.org

What is congenital muscular dystrophy? Congenital muscular dystrophy (CMD) does not just encompass one disease but a group of inherited neuromuscular conditions that usually display symptoms at birth or in […]

fraxa.org

FRAXA Research Foundation’s mission is to find effective treatments and ultimately a cure for Fragile X syndrome. Fragile X syndrome is the most common inherited cause of autism and intellectual disabilities We directly fund research grants and fellowships at top universities around the world. We partner with biomedical and pharmaceutical companies, large and small, to bridge the gap between research discoveries and actual treatments.

cureduchenne.org

Last Updated: March 24, 2021 Please Read Carefully This Privacy Policy describes the information Cure Duchenne (“CureDuchenne”) collects about you, including though our website, how we use and share that information, […]

nva.org

If you know of any upcoming conferences that you would like to have listed on this page, please email Michelle Living. Conferences 29th Annual Scientific Meeting for the International Pelvic Pain Society October 11-12, 2026 Rochester, Minnesota https://www.pelvicpain.org/annual2026 ISSWSH Annual Meeting 2027 February 25-28 2027 Vancouver, BC, Canada https://www.isswshmeeting.org/ Courses/Webinars Introduction To Vulvar Dermatoses: What […]

mitoaction.org

In this Expert Series with Dr. Ganetzky, we will talk about what lactic acid is supposed to do and how that gets dysregulated in mitochondrial disease.

stopsarcoidosis.org

The Foundation for Sarcoidosis Research's FAQs Where can I find guidance on what medications to take? Expand If you are looking for information on

pscsupport.org.uk

Credit card sized PSC Alert Card to help you: understand the symptoms of acute cholangitis and make treatment decisions with your GP or emergency medical team when acute cholangitis (also called bacterial cholangitis) is suspected. Cost UK: free (+ free shipping) We are unable to post to regions outside of the UK at this time. Please contact us if you have any questions about this. Alternatively, the downloadable PSC Alert Card is available, wherever you live. Add a voluntary donation If you think this PSC Alert Card is valuable, please consider a donation to PSC Support to help us continue our work to improve the lives of people affected by PSC. Simply name your price!