rsds.org的 10 大竞争对手

sarcoidosisuk.org

SarcoidosisUK provide information and support to anyone affected by sarcoidosis. We also raise awareness and fund research into sarcoidosis.

scleroderma.org

Welcome to the National Scleroderma Foundation

rarediseaseday.org

Are you ready to light up in solidarity with rare disease patients on the 28th of February? Illuminate buidings or homes at 7pm the 28th

crpsselbsthilfe.org

Schnellnavigation: Hier geht es weiter zu Hilfreiche Links

aiarthritis.org

Empowering autoimmune and autoinflammatory arthritis patients with education, advocacy, and research through peer-led guidance and resources.

fraxa.org

FRAXA is always looking for pictures of our Fragile X families (or friends?) to include with messages that we share to help bring a personal side of Fragile X to the research news. Sometimes you'll see us post a request for specific photos on our social media channels to highlight something fun, you can submit those here, too!

ntminfo.org

Empowering patients with NTM lung disease and bronchiectasis through education, support, and research. Learn. Connect. Breathe easier with NTMir.

mdaquest.org

The FDA approval of ELEVIDYS, the first-ever, gene therapy treatment for young boys living with Duchenne muscular dystrophy (DMD), brought unprecedented hope to families living with DMD. But for some families, that hope is being overshadowed by frustration and unexpected barriers to care as insurance companies deny coverage.