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The National Organization for Rare Di...

The National Organizatio... Market Share Analysis for June 2026

NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

Health > Health Conditions and Concerns

Domainrarediseases.org

Year Founded1983

Employees51 - 200

Annual Revenue$10M - $15M

The National Organization for Rare Di...

The National Organization for Rare Di... (including company regionals)

rarediseases.org

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The National Organization for Rare Di... Revenue up to June 2026 is 10M - 15M

revenue generated by The National Organization for Rare Di... top domains

The National Organization for Rare Di... top domains revenue over 3 years

Revenue for The National Organization for Rare Di... top domains

rarediseases.org10M - 15M

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Total visits to The National Organization for Rare Di...'s top domains

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Total visits last 3 months

Subsidiaries Breakdown

rarediseases.org396.4K

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Avg. visit duration in The National Organization for Rare Di...'s top domains

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Average visit duration last 3 months

Subsidiaries Breakdown

rarediseases.org00:00:43

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Avg. pageviews on The National Organization for Rare Di...'s top domains

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Average page views last 3 months

Subsidiaries Breakdown

rarediseases.org1.80

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The National Organization for Rare Di... top competitors by domain

Top similar sites in June 2026, ranked by their affinity

orpha.netCompany NameOrphanetEmployees51 - 200HQFrance, ParisAnnual revenue$15M - $25MTotal visits678.9KHealth > Health Conditions and Concerns

Top technologies used by The National Organization for Rare Di...

These are the website technologies, by industry, used by The National Organization for Rare Di... top domains

Payment & Currencies (13)

Cart Functionality

Conversion & Analytics (11)

Google Analytics

Advertising (10)

DoubleClick

Social (10)

Instagram

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15

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News & Signals from The National Organization for Rare Di...

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NewsFpa Support partnered with Rare Disorders, Inc. on Jun 10th '26.SUWANEE, Ga., June 10, 2026 (GLOBE NEWSWIRE) - The Facial Pain Association (FPA) is proud to announce the one-year anniversary of the Facial Pain Registry, a landmark patient data initiative developed in partnership with the National Organization for Rare Disorders (NORD(R) on the IAMRARE(R) platform.

NewsRare Disorders, Inc. hired Kathryn Lowell as Executive Vice President (EVP), Government Affairs on Jun 9th '26.Washington, D.C. - June 9, 2026 - The National Organization for Rare Disorders (NORD(R), representing the 30 million Americans living with rare diseases, today announced the appointment of Kathryn Lowell as Executive Vice President (EVP), Government Affairs.

NewsRare Disorders, Inc. hires Cara Tenenbaum as Vice President of Federal and Global Public Policy.WASHINGTON, March 25, 2026 /PRNewswire/ - The National Organization for Rare Disorders (NORD(R) today announced the appointments of Michael J. Beard as Vice President of Federal and Global Public Policy and Cara Tenenbaum, JD, MBA, as Director of Regulatory Affairs, further strengthening the organization's leadership and long-standing commitment to advancing policy on behalf of the rare disease community.