dravetfoundation.orgの競合サイトトップ10

dravet.org.uk

Dravet Syndrome UK launches regular donation campaign - become a friend of Dravet Syndrome UK.

myepilepsyteam.com

MyEpilepsyTeam | The social network and support group for those living with epilepsy

daybuehcp.com

daybue™ (trofinetide) is a prescription oral therapy for the treatment of rett syndrome in adults and children 2 years of age and older.

stoketherapeutics.com

Ed Kaye’s decades-long career has always centered around helping children with severe diseases, resulting in seven approved medicines that have helped change the lives...

umdf.org

Mitochondrial diseases are often under-recognized and misunderstood. Mito University provides patients, families, caregivers and clinicians with the

thalassemia.org

Cooley’s Anemia Foundation strive to ensure every Thalassemia patient lives a longer, fuller life, and we will not rest until we find a cure for all. The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of Thalassemia, most notably the major form of this genetic blood disease, Cooley’s Anemia/Thalassemia Major.

curehht.org

Advanced Resource Search All of our resources in a searchable and filterable format. For curated resources, please view the Patient or Provider Topic pages.  Patient Topics Provider Topics

kidswithfoodallergies.org

Build a Dine Allergy Safe Future For the first time in U.S. history, large restaurant chains in California will be required to label the top 9 allergens on menus, starting […]