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mitoaction.org

Back to Mitochondrial Disease Mitochondrial Disease Frequently Asked Questions (FAQs) Mitochondrial disease is complicated, and people have lots of questions about it. We’ve included some of the most frequently asked questions about mito below. What is Mitochondrial Disease? Mitochondrial disease is an inherited, chronic illness that can be present at birth or develop later in life.

mitocanada.org

MitoCanada offers hope to the mitochondrial disease community through support, education, awareness & research. Connect to feel empowered, inspired & connected.

rarediseases.org

NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

neura.edu.au

An independent, not-for-profit, medical research institute dedicated to improving the lives of people living with brain and nervous system disorders.

dravetfoundation.org

Breccan was born on October 2nd, 2014. He was a healthy, happy baby boy and developed normally for the first few years of his life.

thalassemia.org

Cooley’s Anemia Foundation strive to ensure every Thalassemia patient lives a longer, fuller life, and we will not rest until we find a cure for all. The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of Thalassemia, most notably the major form of this genetic blood disease, Cooley’s Anemia/Thalassemia Major.

kidswithfoodallergies.org

Proteins in substances that are similar can cause cross-reactions. Learn about cross-reactivity between foods, pollen and more.

curehht.org

We’ve taken the International HHT Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Guide to Managing Your HHT. Order a free complimentary booklet through our Join Us form, or click the…

clfoundation.org

CTCL stands for cutaneous T-cell lymphoma, a rare cancer of T-lymphocytes (a type of white blood cells) that involves the skin. There are several types of CTCL, but mycosis fungoides and Sézary syndrome are the most common. We've provided an overview of the disease, treatment and prognosis.