Top 10 sotossyndrome.org Competitors

cvsaonline.org

Kate Conner of Kansas has a gift, and she has shared her gift with all of us living with CVS. Kate has used her gift to create a Quilt of Hope for all to see, and for us to share with the rest of the world as we educate them about CVS.  Kate came up with the idea of putting together a quilt using fabric contributed by 56 CVS-ers from across the nation. The donated fabric was used for the border, flowers and flower pots. Because each patient sent in fabric that represents them in some way, the quilt is a good visual of the diversity of CVS patients.  Each patch in the border is embroidered with the name and age of the CVS-er who donated the fabric. The colors used for each name matches the colors in the fabric allowing the names to fade into the background.  “I chose to embroider the names in this way because between attacks, it is hard to recognize a person with CVS. The only way most people learn about CVS is to get close to someone who has CVS. Likewise, the only way to see the names on the quilt is to get close to it. I felt the attic window design was appropriate because of the large amount of time CVS-ers spend looking out of windows, wishing they could join the fun.”

dsagsl.org

We’re Here Through Every Stage of Life The Gateway Down Syndrome Association serves, supports, and celebrates the lives of individuals with Down syndrome and their families, through every stage of life. GET INVOLVED Facebook Instagram Youtube Celebrating 50 Years with a New Name, Same Heart Formerly the Down Syndrome Association of Greater St. Louis, the […]

costellokids.co.uk

learn more about the rare costello syndrome through our costellokids online research library full on costello syndrome scientific publications.

rett.gr.jp

日本レット症候群協会のトップページです。

hypermobility.org

The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.

noonansyndrome.org

Guide to all things electrical for a residential electrical system written by qualified electricians.