canavanfoundation.org的 10 大竞争对手

canavan.org

Finding the cure Starts with you Donate Now

fanconi.org

Fanconi anemia (FA) patients suffer from progressive bone marrow failure due to the defective hematopoietic stem cells (HSCs) in their bone marrow. The mechanisms of why the HSCs in FA patients are defective remain elusive. Recent studies suggest that DNA damage induced by physiological stress or aldehydes in HSCs may contribute to the bone marrow […]

dystonia-foundation.org

Give dystonia a voice to Congress and policy makers. You have the power to influence policy makers responsible for the areas of government that impact the dystonia community. Help us educate and influence legislators and government officials who influence, for example, how much money is allocated to medical research year, access to treatments, and other issues that impact people with dystonia. Advocates educate legislators about the needs of the dystonia community. The DMRF is a member organization and provides staff support to the Dystonia Advocacy Network, a team of dystonia organizations working together to give the dystonia community a voice in Washington, DC. You can become an empowered dystonia advocate - the community needs your voice!

ulf.org

By offering your time, money, and support, you will help the ULF to continue to provide our many vital research and patient support programs.

ntsad.org

Privacy Policy What Do We Do With Your Information? Section 1 ‐ What Do We Do With Your Information? When you donate, purchase or make a payment to NTSAD, we collect the personal information you give us such

ipif.org

ipif is guided by a scientific advisory council, whose members are acknowledged experts in their fields. ipif consists of patients, physicians, educators, parents, relatives, and volunteers who are striving to take a leadership role in supporting research, education, and funding with an ultimate aim to ameliorate the burdens of ip. ipif is a source of reliable information and support for patients and families in the united states and worldwide. its mission is to encourage and support research on ip, and to provide family support and education.

cjdfoundation.org

Answers to commonly asked questions about prion diseases. If you don’t see your question listed here, please contact us. Accordion Title Accordion Content Is there any treatment or cure for CJD? At the present time, there is no confirmed effective treatment to arrest or cure CJD. Currently, the disease is inevitably fatal. The only treatments available […]