fraxa.orgの競合サイトトップ10

fragilex.org

Guidelines for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.

stopsarcoidosis.org

The Foundation for Sarcoidosis Research's FAQs Where can I find guidance on what medications to take? Expand If you are looking for information on

nva.org

Please contact us by phone at 301-299-0775 or via the online submission form below for further information! The NVA is unable to respond to specific questions about potential diagnoses and courses of treatment (e.g., dosages, interactions). Please contact your health care provider regarding these issues. The NVA does not have any information on health insurance […]

cureduchenne.org

CureDuchenne’s mission - cure Duchenne muscular dystrophy (DMD). Our venture philanthropy model funds research, early diagnosis, treatment

rsds.org

Written by Melissa Wardlaw for the RSDSA blog. In my work as a CRPS/RSD, Chronic Illness & Pain Peer Counselor/Advocate, many patients contact me for assistance and support - particularly those who are newly diagnosed. After speaking with CRPS patients, I usually send them a list of resources they may find useful. As we all

mdaquest.org

The FDA approval of ELEVIDYS, the first-ever, gene therapy treatment for young boys living with Duchenne muscular dystrophy (DMD), brought unprecedented hope to families living with DMD. But for some families, that hope is being overshadowed by frustration and unexpected barriers to care as insurance companies deny coverage.

sdbif.org

This page contains a video library about different brain injury topics, from concussions to adjusting to life after a brain injury.

treat-nmd.org

What is congenital muscular dystrophy? Congenital muscular dystrophy (CMD) does not just encompass one disease but a group of inherited neuromuscular conditions that usually display symptoms at birth or in […]

aiarthritis.org

Empowering autoimmune and autoinflammatory arthritis patients with education, advocacy, and research through peer-led guidance and resources.

give.ebresearch.org

EB Research Partnership is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.