10 principais rarediseases.org concorrentes

globalgenes.org

Although individual diseases are vastly different, our stories and experiences bond us as a rare community. This page offers tips and resources for storytellers.

porphyriafoundation.org

Porphyrias Consortium Publication List

rarechromo.org

Find out how you can get involved to support us, from fundraising ideas to volunteer opportunities.

umdf.org

For 30 years, UMDF has built a network of the top clinicians, hospitals and researchers dedicated to fighting mitochondrial disease. We are driven by a nationwide community of ambassadors solely focused on supporting patients and families affected by mitochondrial disease. Together, we are committed and energized to make a difference by funding the best science no matter where it is found in the world and providing critical programs and services to the patient families we serve.

mda.org

Muscular Dystrophy Association (MDA) has been at the center of progress for people living with muscular dystrophy, ALS, and over 300 other neuromuscular conditions for 75 years.

ninds.nih.gov

ninds is the nation's leading funder of research on the brain and nervous system. find information on neurological disorders, stroke, current research, news and events.