globalgenes.org的 10 大竞争对手

rarediseases.org

NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

pkdcure.org

Presenter: Sixto Giusti, M.D. Description: Sixto Giusti, M.D., provides an understanding of the kidney donation process. Participants will gain insights into the emotional and physical aspects of the process and the supports available for recipients and donors. The session will also delve into the criteria required to be a suitable donor, including medical and psychological

sruk.co.uk

Get informed about support for people living with scleroderma and Raynaud's. Join a community that understands your needs.

ebresearch.org

For the Deshe Family, the mission is clear, “We would love to see this disease gone, and we want to be a part of helping eradicate it—forever.” Ari Deshe, the founder and chairman of Safe Auto...

rarediseaseday.org

Are you ready to light up in solidarity with rare disease patients on the 28th of February? Illuminate buidings or homes at 7pm the 28th

checkrare.com

The Priority Review Voucher (PRV) program incentivizes the development of drugs for rare pediatric and tropical diseases.

pilonidal.org

Join the Pilonidal.org community—read patient stories, share experiences, get help in our forums, and enjoy a dose of pilonidal humor.

aboutibs.org

Do you have a question about irritable bowel syndrome (IBS)? Please send your question from our contact form. While we cannot provide specific advice, we will try to post answers to frequently asked questions FAQ about IBS.

hypermobility.org

The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.

schildklier.nl

Hartkloppingen, een onregelmatige hartslag of zorgen over het hart komen vaak voor bij mensen met een schildklieraandoening. Toch is de relatie tussen de